Tuesday, September 2, 2008

Another Telethon

We just completed our seventh Jerry Lewis Labor Day Telethon! I can't believe it's been that many years. However, as I watched Chloe on TV last night after the day was all said and done with, I couldn't believe how grown up she looked! I remember that baby that I took to the telethon whose big blue eyes wowed the crowd. She's finally grown into her blue eyes...they are still beautiful but don't look as big now that she's older. I'm always so proud of her for doing what she does at the telethon. This year was a bit fun though! She asked her bestest buddy at the TV station questions and he had to answer them! She was so professional while she was doing that. She did such a great job! It was very nice to have a less intense or emotional interview. I think that Chloe needed that. I think mom needed that too! Seems as if we've shed lots of tears at our house lately over different things so I think our emotions definitely didn't need to be overloaded anymore.

I always feel sorry for Conner at telethon time. Chloe gets lots of attention and all that and here's Conner kinda left out! Zine and I try hard to make him feel apart but it's really of no use. There's no way we can overshadow what's going on in Chloe's life! And to top that off, Conner is my sickly child. He has asthma, an immune deficiency, and a chiari malformation. But none of those equal what Chloe has to deal with. But for a child, that's not understandable! So he often feels very lonely during telethon time! However, I want him to be a part of that event in our lives. And I envision one day, that Conner and Chloe will do an interview together on the telethon and he'll be the star of the day! Conner is such an awesome brother...most of the time! He plays so well with Chloe! He loves her immensely. And EVERY night he prays for her muscular dystrophy to go away. So I'm certain that in few years, they'll have a great pair to interview...I just want them to get a bit older and for their bond to be a bit stronger so that everyone will see what I see!

Our local MDA office did an awesome job at putting the telethon together. And our local station did another wonderful job at producing. I must do something special for those two groups soon! Hmm...maybe some brownies are coming on. Mr. Jerry didn't want to share his yesterday so maybe big pans for both places.

I do hope that one day they find a cure for muscular dystrophy. I do hope that it is in Chloe's lifetime. I try not to think about the future most of the time. However, at telethon time the future is always being thrown out there in front of you and it just brings terrible emotions to the surface. So it always takes a few days to get the emotions to settle down and to rest up. But it's such a humbling experience to see the many pledges that are made and the many check presentations that are made by people who care! I'm forever grateful to everyone who plays a part in making the telethon a success.

Now we turn our next fundraising efforts to the MDA 4th annual Stride and Ride that will be held on Oct. 25. We look forward to that event. It is a lot of fun for those involved. We will be Chloe's colorbox. We plan to Tie Dye shirts for everyone. Now I"m trying to think of some fun idea to do with the kids that attend on that day. Last year we made leis. Not sure what to do this year. But it's a lot of fun! We are currently enlisting team members so if you're interested, leave me a comment or send me an e-mail and we'll get you signed up and on your way to raising your own money for the walk. We encourage each team member to agree to raise $85 which is one minute of research. So feel free to join Chloe's colorbox Team.

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