Family Scheduling

I wonder how much time I actually spend organizing and scheduling a day? Worse than that...a week!!

We have a busy week coming up and I've had my mind in gear on how to get everything accomplished in a logistical way with the least bumps in the roads, etc. And it's been time consuming to figure that all out! But at the same time, what kind of life would it be without schedules??? Some days, I think it would be grand...then other days I'm very glad for the consistency in routines and schedules.

Zine's schedule has been iffy lately...I might have to work here or I might have to work there but I won't know until the time comes. So far, it's not affected our time together at all. But it's this constant possibility out there.

I myself have two added appts. this week. A dentist appt. and a drs. appt. Then we added at the last minute scans for Conner concerning his chiari. So I've filled this week up with dr. stuff and am having to get people to help with my kids as well as having to move some regular things around to account for drs. appts. Uugh!!

I think this week I need to be sure and get my basics done around here! And it just seems when my weeks are full...everything around here falls through. So that's my goal this week is to keep life going, routines in place to the best of my ability, despite the added appts. We'll see how I do!

Conner's chiari scans have me a bit worried so that has been very thought consuming. I'm certain that his symptoms of his chiari are worse. I think the prospect of surgery scares us all to death. But at the same time, I'd love for him to feel good. I know that if a syrinx has developed there is no question about surgery...it must be done. I'm kinda concerned that there might be a syrinx developing but then at the same time, I think no it's not. Truth is, until these scans are done...there's no way to know. So we'll go get this done so that we can know for sure. Poor kid! His sister gets lots of attention due to us all being involved in the muscular dystrophy association. But he struggles a lot as well physically. And gets lots less attention for it. We try to help him and give him extra attention along. But I do often feel sorry for him. But he takes it all in stride and goes on with life. I'm so thankful that I have such sweet kids! Lots of people say, your kids are so good or so sweet and I have to believe that it's not parenting...it's the way God has woven them together and through their own difficulties has given each of them their own sweet hearts!

My daughter

Yeah, I have two comments...I'm so glad people read my blog!!

Uugh, something happend tonight that I've been expecting for some time now. I'm trying to catch up Mt Rushmore laundry at my house tonight. Chloe is in shower, I'm in laundry room, and I hear this horrible sound like someone fell, followed by Chloe crying loudly!! I kept her up late to make sure her pupils were equal and they were reactive to light and that she didn't get sick at her stomach but she's cried on and off ever since. She was sitting in my lap and ever once in awhile I could feel her whole body tighten up! She was hurting so bad!! The medical evidence you look for seemed to be okay...but her head really hurts. She had a hard time even laying down when I took her to bed! So needless to say, Chloe can no longer take showers, she's banned to the bathtub alone! You know, she can be doing so good sometimes, then something happens that just takes you back three steps. I felt like this was one of those things that was a step back. I know that anyone could fall in the shower but she's been wobbly due to her md lately. I've been surprised that she hasn't fallen before now to be honest. I just didn't want to change it for her if I didn't have to. But I think it'll be a long time, if ever, for her to want to take a shower again!!

Really weird, it used to be that the only symptoms we saw consistently was fatigue. Well, her fatigue issue is so much better right now and she's seemed so much stronger due to lack of fatigue. But I've been noticing that she's crawling on the floor a lot, that sometimes when she walks she bounces kinda and I've also noticed her falling fairly frequent. And it seems that when she's in the floor, it's getting harder for her to get up. Sometimes she bounces right up then other times you can visibly see it's hard for her. I've offered to help her a few times and I noticed the other night my husband noticed that she was struggling and he walked over and put his hand out to help her up. So that told me it wasn't just me that noticed.

I thought about my friend Casey tonight, who left me such a wonderful comment last night on my blog. My sweet child was pretty easy to take care of, compared to what her sweet children would have been if they had fallen and hit their head in the shower. At least it did not necessitate an immediate trip to the ER!! I have that to be thankful for!!

Growing Up

I began to realize over the course of the week that my kids are growing up. My daughter is looking more grown up. Last Wednesday at boy scouts, my son learned knife safety and began his first whittling activities. My son...old enough for a knife...no way!! I'm working with both kids on when we listen we listen not only with our ears but with our body as well. My son is learning the concept of an assignment that needs to be completed by such and such date. He's learning it is no fun to wait until the very last minute to complete. These are all signs that they are growing up. And I know deep down I want my kids to grow up but it is so sad too!

And then when I think about that, I start worrying...am I being a good mother? Am I teaching them what they need to know so that when they are older, they will be prepared for what they will encounter? Am I setting a good example for them to follow?

But I just have to remind myself that I am doing my best to teach them what they need to know. I just pray that God would continue to give me wisdom as I teach them. And I pray that their hearts will open to Him and His desires for their lives.

Back to Routines

We started back to homeschooling on Monday. So this will be our third day back in the groove of things. It's so nice to have time off and be with family and friends, but there's some good things about being back in routine as well.

As far as reading Bible, I've not missed a day so far. I'm learning that you have to look at the historical background of when a book in Bible was wrote. So that "can't live beyond being 120" can't be because Abraham and Sarah both lived beyond 120 and we think that they lived after Noah's time. A friend tells me that you have to go back to the Hebrew text in the Old Testament and that dates were not that important to the Hebrew people. And although the Bible is inspired by God and is God breathed, each book has a flavor of the person who wrote it. I want to know more about God's word. I know a lot, but when I read scripture I want God to make it real and point out truths that will change my life and my children's lives.

Speaking of my children, they are both healthy right now. Daughter's hand is much better...after much thought...we have decided that she most likely hurt her hand doing something out of her normal. We do see the OT on Thursday and will have some splints for her to wear during the day time. I hope that these day time splints make a huge difference.

Off to begin morning routines and get some schooling underway.

New to this!

This is my first blog! I've thought that they were neat, but I've never set one up! This year, I had the bright idea to make a family website and to set up a blog for each of us. So with my husband's help, we're trying to do that!

I can ramble on about a lot of things. My kids are usually what I'm rambling about. Today we've had play dates all day. And I'm worn out. We start back to homeschooling Monday. I'm worried about daughter's hand. Hopefully pediatrician will have great advice tomorrow about this issue with hand feeling like it's asleep. I sure don't want to have to go to having nerve conduction studies done which has been mentioned.

I'm also trying a new way to read the Bible...got a Chronological Bible for Christmas. So gonna try that this year. Saw this news story earlier today about a lady celebrating her 114th bday. I had just read that after the flood, the Bible says that humans would not live beyond 120. So that was pretty interesting thought that I had just read the scripture then saw the story.

Glad to be healthy right now...no one is sick at my home! Off to watch ER. I'm an avid ER fan.